My chosen charity Sarcoidosis Lyme Australia, is very personal and close to my heart http://www.sarcoidosisaustralia.com/
There is not enough known about either diseases, here in Australia – and that’s the problem. Today I interview a very important person, my mum, Coleen. Mum is currently winning the fight against Lyme Disease, although some days it’s a battle for her to get out of bed.
Here’s her story.
Tell us about your journey from falling ill, to being diagnosed with Lyme disease.
It was around April 2010 that I knew I had to see a doctor. I was feeling sicker and sicker. Doctor after doctor and test after test revealed nothing. They had no idea what was wrong with me. A Naturopath suggested Chronic Fatigue and put me on medication.
I knew it wasn’t that.
Finally, in my attempt to figure it all out, I came across an article on Lyme disease. I knew I had it. I had all the symptoms.
It was difficult to find anyone who knew about Lyme disease, especially testing, and I had to travel to Coffs Harbour. Australian Biologics came back with my answer.
I tested positive for Lyme.
I finally knew what was wrong. It was, in some way, a relief.
It took a long time to get to that point, though – far longer than it should have.
A small study in the nineties showed that no ticks in Australia carry Lyme disease. The government then concluded that no Lyme lives here. It’s been that way ever since.
What are your symptoms?
– Sore throat and mouth
– Chronic Fatigue
– Uncomfortable fuzziness in the limbs. I have to walk around a lot, especially at night. This later turns into immobility.
– Severe weakness
– Loss of balance
– Neurological – brain fog, memory difficulties, difficulties reading and writing
– Feeling like you’ve been poisoned
– Without treatment, Lyme disease is fatal. I am lucky I researched and caught it. Others have not been so lucky, here in Australia. It’s an absolute tragedy, because there is medication for this disease. This disease is treatable.
What does it take, to get proper medication?
First you have to travel to one of the three places that test for Lyme; either Coffs Harbour, the Sunshine Coast, or Sydney. The medication can be bought from the chemist but it’s extremely expensive.
If you suffer from Leprosy or Tuberculosis, you get a big discount. Lyme suffers don’t.
What message to do you have for those who read this?
The Government and health professionals of Australia need to be educated about this disease, and stop ignoring it.
If you are bitten by a tick, Lyme disease can be cured in the first two weeks of contracting it. After that, it gets into your body and is very difficult to eradicate.
Just be aware. This is a good Q and A site. http://www.lymedisease.org.au/faq/
Thanks for reading and please take the time to SHARE and BE AWARE.
For the release of my novel, White Walls, I have chosen Sarcoidosis Lyme Australia as my charity. $2 from every book sale will go to them. I’m not sure what we will achieve, but just knowing about LYME is the answer.
Join the online event HERE, have some fun and win prizes. http://www.hmcwriter.com/white-walls-launch-party/
WORLD PROTEST ON LYME
This is a great article about LYME AWARENESS this May.
Very exciting news for us!
‘The Australian Government Chief Medical Officer, Professor Chris Baggoley, has established a Clinical Advisory Committee on Lyme disease to provide him with advice on the evidence for Lyme disease in Australia, diagnostic testing, treatment and research requirements. The Committee will also provide advice on the most appropriate ways to disseminate information to health professionals and the general public.’
Sign up to receive special emails from the author at HMC. CLICK HERE